Nathan and Bennett, ages 12 and 8, live in Erdenheim, PA with their parents, older sister, and dog Ruby. They both have a rare form of Progeria called Mandibuloacral Dysplasia (MAD) and have similar medical conditions to children with classic Progeria. Nathan and Bennett love having fun and hanging out with their friends, family and the community. After fundraising for PRF for many years, their supporters created the Philadelphia, Pennsylvania Chapter of PRF in 2015 to continue to raise funds and awareness.
The team’s goal is to FIGHT FOR THEIR FUTURE, so that Nathan and Bennett can live long, healthy lives. They will only achieve this through funding research that finds a cure in time to stop this progressive disorder. PRF not only funds the clinical trials in which Nathan and Bennett participate, but also vital research toward the cure.
PRF has brought this disease from total neglect to a treatment that is giving children like Nathan and Bennett stronger hearts and longer lives. We have made so much progress, and have so much hope, because of you.
Together, we WILL find the cure!
Thank you for your support!
Follow Nathan and Bennett on their PRF Chapter/Facebook page, Fighting for Their Future!
Please email NathanandBennett@gmail.com if you have any questions.
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